Patients have a range of capabilities based on their experience, skills, knowledge, interest, or time. Patients have developed knowledge from their own experience and are able to transpose this experience to represent the views of others.
In the SCCL-PPI model, patients are supported, trained and categorized for their capabilities (defined by the patient) to engage meaningfully and represent effectively for people affected by cancer.
Capabilities refer to:
Capacities of the research group
Estimation of resources available in terms of PPI experience and knowledge, time, and costs. Resources may determine the number of patients, their level of involvement, or the selection of methods. All these factors might have an impact on the PPI outcomes that researchers have to consider.
In the SCCL-PPI model, researchers are trained and coached on their requests based on their specific needs and resources.